The Tale of Sophie J. Sparkle
by Marjana Maisha

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Sophie is an imaginative little girl who loves to read. One day, she has to go to the hospital for a rare condition called Stevens-Johnson syndrome. The hospital can be a lonely place, and she worries she won’t even be able to read her beloved books. Little does she know that magical companions from unexpected places await her there ... The Tale of Sophie J. Sparkle follows Sophie as she discovers the importance of courage, friendship, and kindness in challenging times, with the help of imagination and a little magic. Illustrated in colour throughout and dedicated to all “courageous young warriors battling illness,” wherever they may be. The Tale of Sophie J. Sparkle is the first children’s book to introduce Stevens-Johnson syndrome. It includes a fact sheet for family members and other caregivers.

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"An uplifting must-read for both parents and children, this book captures the essence of resilience through its enchanting narrative. Sophie’s journey is a testament to the transformative power of literature with vital lessons on courage, friendship, and kindness and the unwavering support of loved ones during challenging times. With vibrant imagery and heartfelt themes, this story will inspire young readers and their families, reminding us all that even in our darkest moments, hope and love can light the way." —William Cooke, PhD, Literature, Harvard University “This is a wonderful book and resource for those children and families dealing with the rare condition of Stevens-Johnson Syndrome. It is sure to help families cope and will provide them with support and hope.” —Dr. Vaibhav Kamble, MD, CCFP, FRCPC, Assistant Professor, University of Toronto "This creative book is a unique approach in educating and encouraging children who may be experiencing the very frightening and potentially life-threatening medical condition, Stevens-Johnson Syndrome. Heart-warming, gentle, and uplifting, it demonstrates to young readers the value of bravery, the preciousness of supportive friendships, and the inspiration of finding greater inner strength in the face of significant adversity." —Dr. Terri Luvisotto, MD, CCFP, FCFP

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Marjana Maisha is a recognized public speaker and humanitarian, who was born and raised in Toronto, Canada, where she resides. Marjana has a long history of raising awareness and seeking to empower others around important issues, dating back to grade three, when she spoke on the inequities of racism and was broadcast live on CityTV and CP24 television. She is founder and former executive director of the University of Toronto’s Stevens-Johnson Syndrome Foundation, where she received her degree for Life Sciences in Neuroscience and Population Health. Marjana is currently the founder and director of the Spark of Courage Foundation, a non-profit organization that strives to support and empower people through fundraising, activities, and speaking events. Marjana has always been an avid reader and speaker. During the pandemic, her spoken-word poetry on a doctor's perspective in COVID-19 was published in 2020. Along with her work as a published poet, she has also contributed to the field of emerging population health issues as a published researcher from 2022. One of her lifelong passions is music as an integral expression of her artistic identity as a singer-songwriter. She is also an animal lover, cat rescuer, and enjoys travelling. Driven with passion for promoting well-being, bridging health knowledge gaps, and advancing global health initiatives, Marjana is dedicated to inspiring young people to take charge about their well-being and reach their full potential. Follow Marjana’s work at www.marjanamaisha.com.

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Contributors

Author

Marjana Maisha